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Maine Indians to serve on the federal government's tick-borne illness taskforce



The Department of Health and Human Services (HHS) has named Paula Jackson Jones as one of 53 individuals selected to work in one of six Subcommittees of the Zeckenborne Disease Working Group.

A Nobleboro native Jackson Jones, a graduate of Nobleboro Central School and Lincoln Academy, is president and co-founder of Midcoast Lyme Disease Support & Education (MLDSE). Recently, she was nominated by members of her subcommittee to fill the vacant co-chair position in the Access to Care Services and Patient Support sub-committees. As a survivor of late-stage neurological Lyme disease complicated by four tick-borne disease coinfections, Paula is no stranger to the plight that patients go through to be properly diagnosed and treated. Her patient advocacy and unwavering commitment to education and awareness, as well as support and access to care for the Maine Lyme community have made her highly qualified for this position.

Other subcommittees include:

  • Disease Vectors, Surveillance and Prevention [1
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  • Testing and Diagnostics
  • Vaccine and Therapeutics
  • Other Tick Diseases and Coinfections

These Subcommittees were established by members of the Working Group was established during the meeting on 12 December 2017. Support for the identification and verification of information that provides the background, context and evidence needed to develop the report to Congress and the HHS Secretary, as Century Cures Act provided.

Dr. Kristen Honey, a native of Portland, whose father, Tim Honey, was former Portland City Manager, serves as vice chairman of the working group. Dr. Honey is Senior Policy Analyst at the White House Management and Budget Office, President's Executive Office, Washington D.C. She is also a Research Fellow at Stanford University and a member of the Stanford University Lyme Disease Working Group. In the years 2015 to 2016 Dr. Honey co-founded Lyme Innovation and led data-driven innovations for invisible illness, mental health and suicide prevention from the White House Science and Technology Policy Office.

Working group tick-borne disease was established on 10 August 2017 to provide expertise and review all HHS-related tick-borne diseases, to ensure coordination between authorities and to minimize overlap, investigate research priorities and dissatisfied Identify and address needs. In addition, the working group will report to the Secretary and the Congress on its findings and recommendations for the Federal response to the prevention, treatment and research of tick-borne diseases, and address gaps in these areas.

For more information on the HHS Tick Disease Working Group and subcommittee work, visit https://www.hhs.gov/ash/advisory-committees/tickbornedisease/index.html


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