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Reducing the Alzheimer's Stigma could improve research



  Reducing Alzheimer's Stigma May Improve Research

A recent study suggests that ongoing research into Alzheimer's disease may be challenged by the disease-related stigma. This concern arises from the results of a national survey that fears people will have early-onset Alzheimer's disease, fearing discrimination – especially possible health insurance restrictions.

Researchers say that these fears are hopefully due to the development of new guidelines for the protection of individuals. Non-publication of early symptoms, which may or may not be Alzheimer's disease, hinders the individual's ability to receive timely care. In addition, a person may miss the opportunity to participate in clinical trials that discover potential therapies.

The results are the results of a national survey of which beliefs, attitudes and expectations are most commonly associated with Alzheimer's disease. The results of the survey appear in Alzheimer's and Dementia: The Journal of the Alzheimer's Association

"We found that concerns about discrimination and overly harsh judgments about the severity of the symptoms were most common", said Shana Stites, Psy.D., of the Perelman School of Medicine, University of Pennsylvania.

"Understanding what the greatest concerns about the disease are, we can help develop programs and guidelines to reduce the stigma surrounding Alzheimer's."

The study consisted of a sample of 317 adults who were asked to respond to a fictitious description of a person with mild dementia at the stage of Alzheimer's disease. Researchers asked respondents to read a vignette and then complete the survey.

Three different reviews were submitted for the condition of the fictitious person. Respondents were told that the person's condition would worsen, improve or remain unchanged.

More than half of respondents (55 percent) expected that the person with mild cognitive impairment or dementia due to Alzheimer's would be discriminated against by employers and excluded from the medical field. Decision-making

Almost half expected health insurance to be Person due to data in the medical record (47 percent), an imaging result (46 percent) or a genetic test result (45 percent) would be limited. These numbers increased when respondents were informed that the condition of the person with Alzheimer's would worsen over time.

The results of the study suggest that respondents, despite the fact, continue to have concerns about documentation in the medical records or test results have some safeguards against discrimination based on gene-based health insurance by the Genetic Information Nondis- discrimination Act of 2008. [19659003] these public concerns but also includes issues that are not addressed in this legislation, including the results of brain imaging [19659003DarüberhinausfandendieAutorenderStudieherausdasswennmansagtedasssichdiePrognosederfiktivenPersonimLaufederZeitverbesserte24Prozentbis41ProzentwenigerBefragtenerwartetendassdiePersondiskriminiertoderausgeschlossenwürdealswennmansagtedasssichdiePrognosederPersonverschlechternwürde

researchers According to these are advances in therapies that improve the prognosis of Alzheime

"the unfortunate Stigma associated with Alzheimer's t, can prevent people from getting the diagnosis they need, or the opportunity for early intervention that could improve their quality of life, "said Maria C. Carrillo, Ph.D. , Chief Science Officer, Alzheimer's Association

"We need to reduce stigma in order to encourage people with mild or no symptoms of Alzheimer's disease to participate in prevention studies to find effective treatments also have an impact on the national goal of developing effective therapy by 2025. "

Carrillo stressed the importance of early diagnosis for people with Alzheimer's and related dementia and their families to have more time for future planning. Optimal care is associated with decision-making in treatment, housing, and financial and legal matters. In addition, setting up a care team helps to manage the disease more easily.

Source: AAlzheimer's Association / EurekAlert

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APA Reference
Nauert PhD, R. (2018). Reducing the Alzheimer's stigma could improve research. Psychocentral .
Accessed on March 28, 2018, from https://psychcentral.com/news/2018/03/28/reducing-alzheimers-stigma-could-enhance-research/134185.html


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