San Antonio – Doctors are working on a diagnosis and care plan for a boy who spent the first three months of his life in hospitals after being born without skin.
Yes, Bari Gray has been hospitalized since his birth on January 1 at the Methodist Hospital in San Antonio, the San Antonio Express News reported. Since most of his skin was missing except for the head, aplasia cutis was initially diagnosed, a rare congenital skinlessness.
After being transferred to Texas Children's Hospital in Houston on Friday, specialists temporarily diagnosed him with epidermolysis bullosa, a rare genetic connective tissue disorder that makes the skin extremely brittle, and blisters and tears, even with minor friction or pain
Yes, "Bari now has skin on his head and some of his legs, but none on the arms or torso, so he is often treated with bandages and ointments to ward off the infection," said his mother, Priscilla Maldonado.
"They just focus on making him feel good," she said in the San Antonio Express News.
A spokesperson for Texas Children's told CBS News that baby Ja & # 39; bari is in a "critical" condition. Relying on HIPPA data protection laws, the hospital said it could not provide any further information about the patient's health.
Maldonado said that she and her husband Marvin Gray will undergo genetic testing to confirm the diagnosis as the disease is inherited.
"It may take two to three weeks to get an answer, you do not want to treat my son for the wrong thing," Maldonado said.
She and Gray have two other children, ages 5 and 6, who stay with Maldonado's mother while the couple watches over their baby.
"I have been able to hold on to it twice, but you must have dressed in a cloak and put on a glove, it's not skin to skin, it's not the same," said Maldonado.
Doctors plan to perform an operation to cut scar tissue that fuses Ja & # 39; s chin to the breast. His eyes have also merged since birth. Macedonado covers some of the child's medical expenses, Maldonado said, and the family is being asked for help by Taco Cabana, which employs both parents. There is also an account set up at GoFundMe.
Maldonado said the doctors had not said how long Ja'bari would have to stay in the hospital.
"Even if he comes through, we do not know what the future holds," said the mother. "We just pray every day, every day is a blessing."